The Last Letter

there's more than one way to be brave

Write one last letter. That’s what fifteen-year-old Amelia’s psychologist says when she tells him about her time capsule—a My Little Pony lunchbox she’s buried in the backyard garden after listening to the preacher on the corner shout about the end of times.

 

One last chance to leave her mark when the world's been shaken to its core by a national tragedy not even the preacher sees coming.

 

One last story of humanity’s ability to endure, like in all those historical disasters her mother recites like fairytales.

 

One last reminder of her existence, when her illness has turned her into such a ghost of her former self, one more exhale is all it will take before she disappears completely.

 

One last letter to tell the world how she’s lived and who she’s loved and what she’s trying to survive.

NOW AVAILABLE!
Read An Excerpt

Lyme Disease Awareness

The Last Letter is a semi-autobiographical account of my own experiences living with late-stage, Chronic Lyme Disease. This book, while primarily a work of fiction, became a way for me to share my story, including the struggle to find a diagnosis, the complications that come with treating such a complex illness, and the emotional toll that years of fighting for your own health can take on the soul.

 

I wanted to share my story, knowing that my experiences with Lyme Disease and similar chronic, "invisible" illnesses are shared by hundreds of thousands of people across this country and the world. I needed to write this story, knowing that the number of Lyme-specific cases keeps growing exponentially, knowing that there are so many others, like me, who feel alone in their suffering and are struggling to just be heard.

 

I had something to say, but I didn't know how to say it. I had a story to tell, but I didn't know how to tell it. Until Lia offered her voice and the right words followed.

It's my greatest hope that through this story, you can find the inspiration for your own.

 

 

Editorial Reviews
 

"Teens reeling with personal and national crises will find themselves in this teen girl's voice. The story evolves from a letter writing assignment, completed out of duty, to a journal that provides much needed mooring through difficult times. The protagonist's voice is the heart of the novel; she is earnest, honest, and her emotions and thoughts are easy to relate to. The book gives an inside look at what it was like to be a teen during September 11, 2001 and its aftermath--a time today's teens don't recall. The broader historical crises matches the tone of the difficulty in the character's life, creating a resonance that will feel familiar and authentic to teens. The story will relate to a wide variety of teen readers, but particularly those who are dealing with Lyme disease or another chronic illness that it hard to live with, understand, and share about with others. The themes of loneliness and connection, despair and perseverance, and beauty in the midst of ugliness are timeless and vital to teen readers looking for something positive in life and in the world around them." - Judge, 25th Annual Writer's Digest Self-Published Book Awards (Honorable Mention, MG/YA)

"Pogorzelski's exceptional debut shares the challenges, dreams, fleeting optimism, and difficulties of 15-year-old Amelia Lenelli at the turn of the millennium. Adolescence is hard enough, but Amelia is facing other troubles: her physical and mental health are deteriorating. As the symptoms of her mysterious illness worsen--and the attempts to identify a diagnosis continue to fail--her friends disappear into their active lives while Amelia wonders if her own life is ending. She describes her struggles in letters addressed to "Whoever you are," an imagined reader who fills the companionship void. She hides nothing, sharing the depression--and thoughts of suicide--that can accompany sickness, pubescence, and loneliness. Pogorzelski writes this semiautobiographical novel with authenticity, and her young character displays relentless wisdom in an honest, mouths-of-babes style." - Publisher's Weekly

"This book is a MUST read! The story blends the author's personal struggle with Lyme onto the page. It is an inspiring read for Lyme patients but also very relatable and good to share with friends and family." - Minnesota Lyme Association - Minnesota Lyme Association
 

Reader Reactions

 

"The Last Letter by Susan Pogorzelski is a thoughtful, authentic and compelling story that will challenge and change your attitude about living silently with a chronic illness…or supporting someone you love who is living with an invisible disease. It is for anyone who has ever felt like they missed out or are currently missing out on life. This book reaffirms that you are not alone and to be grateful for every good day you have. Ultimately, it is a story of hope…that giving up is not an option. And if you push through the darkness, you will find the light again." - Amazon Review

"As a Lyme/MSIDS sufferer, I felt so much validation and for the first time in over a decade, I felt--FEEL--like I am not alone! I feel like someone gets it, and just knowing that SOMEONE truly gets it is more helpful than any medication! Anyone who suffers from any illness and anyone who knows someone who is or was suffering will be able to relate to Amelia's struggle." - Amazon Review

"I cried for Amelia throughout the book, and had literal chills during parts of it. I ached for her, for her physical and emotional pain. Amelia is my friends and family members who have and do suffer. If you or someone you know has or thinks they have lyme, read this book." - Amazon Review

"I loved reading this story of a teenage girl with the complications of high school romance and the underlying illness - it was full of mystery, and heartache, empathy, understanding, longing. Great read."
- GoodReads Review

"A really good read that's sure to bring comfort & support to others struggling with, as Amelia repeatedly calls it, 'this damn disease.'" - GoodReads Review

"A series of letters telling an inspiring story you want to know. Received as a goodreads giveaway, I feel fortunate to have read this book and recommend others read it also." - GoodReads Review

 


(See the Press page for more editorial and peer reviews.)

 

 


To read more about my experiences writing this book, check out the blog.

To learn about my personal experiences with Lyme Disease, check out LymeBrave.

 

To connect with the Lyme community on social media, check out Being LymeBrave.

For book excerpts and to learn more about the emotional ramifications of living with
Chronic Lyme Disease, check out the videos below:

The Last Letter Video Series: Introduction

The Last Letter Video Series: Letter #1

The Last Letter Video Series: Letter #3

The Last Letter Video Series: Letter #2

The Last Letter Video Series: Letter #4

Be LymeBrave!
Get The Book
Visit The Sites

LYMEBRAVE FOUNDATION, INC

LYMEBRAVE SOCIAL

Tell Your Story
Quotables
Lyme Awareness Video Series

The Last Letter Video Series aims to raise awareness and lend a voice to the hundreds of thousands of patients silently suffering from Chronic Lyme Disease. While the often unbearable physical symptoms of Lyme Disease must be acknowledged, the book excerpts in these videos were chosen to emphasize the emotional toll of living with such an illness.

This video series is for entertainment/educational purposes only and is not intended as a substitute for the medical advice of physicians. Please consult with your doctor in any matters relating to your own health.

For more information on Lyme Disease, please visit LymeBrave.

*The excerpts in this video series may not reflect the book's final writings.*

 Video Series Credits

Many thanks to the following people who helped make this video series possible!

STAR FILMS

A thousand thanks to the talented
Star Bunner of Star Films for all the production work done on this series! This awareness campaign wouldn't be half of what it is without him.

CHEESE TEETH MUSIC

A special thanks to Jon Ross and fellow Lymie Briana Carraher of Cheese Teeth Music for their song, "When I Am Blind, I Shall Know the Sun's Face," as heard in the Introduction video.

Listen to more of their gorgeous, original songs over on bandcamp.

BENSOUND

Additional royalty-free music as used in the video series is available from Bensound.
 

The Last Letter Video Series: Conclusion

Stay tuned to the LymeBrave YouTube channel for more videos about Lyme Disease (Coming in 2017)

© 2021 by
Susan Pogorzelski.

 

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